CT FEAT sponsors a
private, confidential “Parents Only” Listserv Discussion Group where
hundreds of Connecticut families share information and insights drawn
from their lives with autism. Listserv discussions sometimes produce
exceptionally valuable information which, with the authors’ permission,
we post here in the form of “Parent to Parent” articles.
These articles, unless otherwise noted, are the property of Connecticut
Families for Effective Autism Treatment, Inc. (CT FEAT) and their
authors, and are copyright protected. They may be used only with proper
attribution.
Click here for the CTFEAT latest Autism Resources List (Beth Lambert
; added 2022)
Resources in Connecticut for families.
GET CREATIVE ABOUT RESPITE (
Connecticut Lifespan Respite Coalition, Inc., added 2022)
NEW! A Parent’s Guide to Respite Care.
Valulable CTFEAT Archive Information
Autism Treatment Beyond the Wonderful World of Disney (E. C. Thorpe; added 2014)A young adult, formerly on the spectrum, reflects on the limitations of the “Disney” approach to autism therapy.
How to
Prepare for a PPT and Triennial Results Meetings (Patricia
Stavola; added 2014)
A parent provides extensive practical advice on how to navigate
the sometimes intimidating and often complex world of PPT meetings.
LIST of Indoor Activities for Children Compiled by
CT FEAT Parents (2014)
Professional Competency Standards for Providing ABA Services to Children
on the Autism Spectrum (a CT FEAT parent; added 2013)
Unfortunately, parents are sometimes told that their child is
receiving an “ABA program” when the professionals involved don’t have
the necessary competence to provide the service. How can a family
determine if a professional working with their child has the requisite
training and skills?
Transitioning from Birth To Three
to Special Education: Be Aware
(Diane Willcutts; added 2013)
Parents attending their first Planning and Placement Team (PPT)
meeting to transition their child from Birth to Three to the school
district may be in for an unpleasant surprise.
Birth to Three providers are told by the State of Connecticut that they
may not make recommendations for goals, services, or placement unless
this is requested by the school district. This can be a big problem for
families, who are understandably looking for Birth to Three staff to
provide meaningful input for the PPT to consider.
Strategies for Connecting With Your Growing Child (Molly Helt; added
2012)
I find that as my son gets older (he’s now 13), he is much less
engaged in many activities than he used to enjoy when he was younger.
Like many parents of growing children on the spectrum, I know the
frustration of wanting to keep him connected with a variety of interests
at home but not quite knowing how.
Transitioning Your Child with Autism from Birth to Three to Your School
District (compiled for CT FEAT by parents of children with Autism;
added December 2011)
By age 3, your child will transition out of the Connecticut Birth to
Three System (B23) and into your local school district for all of their
educational/disability requirements. The earlier a referral is made, the
better. You should reach out to the school district when your child
turns 2-years-old. This gives everyone plenty of time to meet each other
and prepare for the transition. It is important to remember that B23
services will end with your child’s third birthday and the goal is to
have other services and support programs through the school system
already in place. Early planning for this transition is essential to
ensure your local district has appropriate services available
How One
Parent Built her Child’s Play Skills while Reducing His Self-Stimulatory
Behavior
(Cristin Millen; added October 2011)
The recent discussion concerning the challenge of keeping a
four-year-old engaged really got my attention. I remember that when I
first joined the CT FEAT Parent Discussion Group I posted a similar
question: “Would my child EVER stop lining up and spinning toys and
ACTUALLY play with them?” So, in honor of all the wonderful moms, like
Beth Lambert, who shared their stories with me, I’d like to share my
journey towards how I FINALLY got my kiddo to play.
Being a
Team Player: Observing Your Child In The Classroom (Katie Cooper; added June 2010)
Whenever a parent expresses concern about their child’s lack of
progress at school or home, my first piece of advice is to get into the
classroom to see what is happening. Over the 13 years my son has been in
school, I have learned a tremendous amount by observing him there.
Evaluating
Educational Programs for Children with ASD (Katie Cooper; added June 2010)
I wanted to share with my fellow parents what I learned at the highly
informative presentation by Erik Mayville, Ph.D., BCBA-D, at the March
2010 conference put on by the CT Association for Behavior Analysis (CT
ABA). Dr. Mayville, who works at The Institute for Educational Planning
(IEP) in Milford, CT, titled his workshop “Evaluating Educational
Programs for Children with ASD.”
Fun Stuff to Do With Kids:
A list of Regional Activities Suggested by Parents on the CT FEAT
Listserv (Compiled by a parent volunteer, added 2009)
Here are more articles written from a parent’s perspective.
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