IN THIS ISSUE: CT FEAT Newsletter, Vol. 2, No.1, Winter 1999
Note: The content of this newsletter is, unless otherwise indicated, the property of Connecticut Families for Effective Autism Treatment, Inc. (CT FEAT) and is copyright protected. It may be used only with attribution. Copyright © 1999, CT FEAT, Inc.
World Class Conference at Yale
(by B.C.)
Though its rather bland title ("Autism, Asperger’s Syndrome and Related Conditions") may not signal as much, Yale University’s upcoming March 1999 conference promises to be one of the region’s most exciting autism conferences in recent memory.
This conference, which takes place on March 12th and 13th in New Haven, appears to represent a new departure for its sponsors, the Yale Child Study Center and the Yale School of Medicine. Historically, their jointly sponsored semi-annual autism conferences have been focused principally on diagnostic and etiological issues. This conference promises to be much richer because it includes many prominent treatment professionals, as well as some of the world’s most distinguished researchers and diagnosticians. There will be a mix of plenary sessions and workshops.
The internationally renowned Sir Michael Rutter, M.D., who is a Professor of Developmental Psychopathology at the Institute of Psychiatry in London, England, will deliver the closing plenary session on "Genetic Studies of Autism: From the 1970s into the Millennium." Dr. Rutter is probably the most distinguished autism professional of his generation. He is on the Editorial Boards of over 20 journals, and his own publications include some 37 books, 140 chapters and over 300 scientific papers.
Other presenters include the co-authors of the influential 1998 book Right From the Start, Mary Jane Weiss, Ph.D., and Sandra Harris, Ph.D. Dr. Weiss will speak on "Early Intensive Behavioral Intervention for Autism: Essential Elements," and Dr. Harris will join with Michael Powers, Psy.D. to present "Developing Positive Behavioral Supports: Strategies for Change." Dr. Powers also will present a talk on "The State of the Science in the Behavioral Assessment and Treatment of Autism and Related Disorders." Dr. Power’s speech on a similar topic at a recent New York State Applied Behavior Analysis Association (ABA) conference was extremely well received.
Carol Gray, who developed the popular "Social Stories" method for teaching social skills, will make two presentations - one plenary and one workshop. The plenary session will be on "How to Teach Social Understanding." The workshop session, "Advanced Social Stories and Instructional Techniques," is aimed at those who have previously attended one of her "Social Stories Unlimited" workshops and have a working understanding of the social story criteria.
Marie Bristol, Ph.D., of the National Institute of Child Health and Human Development at the National Institute of Health (NIH), will bring us up to date on "Research in Autism: The State of the Science." And two of the country’s most distinguished diagnosticians and researchers, Fred Volkmar, M.D. and Ami Klin, Ph.D., will discuss "Diagnostic Concepts" and "Neuropsychology."
Drs. Volkmar and Klin, the conference’s directors, are to be saluted for assembling this stellar roster of presenters.
REFLECTIONS ON ABA CERTIFICATION BY AN SLP
(Mariele Koenig, Ph.D., CCC-SLP, CBA/PA)
The wide publication and impact of Let Me Hear your Voice Let Me Hear your Voice (Maurice, 1993) and Behavioral Intervention for Young Children with Autism (Maurice, Green, & Luce, 1996) prompted professionals from various backgrounds to examine/re-examine Applied Behavior Analysis (ABA) as a framework for teaching children with autism. As a Speech-Language Pathologist (SLP), I had many reactions to the publication of these books. One (albeit not the first) was the decision to participate in behavioral intervention program under the supervision of a nationally recognized program consultant.
These and other related experiences eventually led me to include ABA within my own professional repertoire. In August of last year, I completed the requirements for certification in behavior analysis. What follows is a description of the certification process in Pennsylvania and some reflections on my experience of this process.
Background:
In 1996, Gerald Shook and Judith Favell (in Maurice et al.) described the credentialing process for behavior analysts in Florida. This provided families with a list of minimal competencies they could expect from professional behavior analysts who serve as consultants to their children’s home-based or center-based programs. In 1997, a number of families in Pennsylvania took these standards to the Department of Education’s Central Instructional Support Center (CISC) and urged administrators to create an ABA credentialing process based on the Florida model.
By Spring, 1998, Dr. Shook had been hired as a consultant and the credentialing program had been put in place. With the support of Penn State University and the magic of distance learning technology, approximately 75 professionals from around the commonwealth were participating as students in a four-part graduate-level course sequence that would eventually qualify them to sit for the culminating standardized certification exam. A few of us have already completed that exam. The majority of the group will take the exam at the end of February 1999.
Requirements for the Credential:
Like the Florida model, the Pennsylvania’s model offers two levels of credentialing: Certified Behavior Analyst (CBA) and Associate Behavior Analyst (ABA). The CBA is the more stringent of the two. Each credential requires an applicant to have met specific criteria with regard to:
Academic degrees and course work
Supervised clinical experience
Successful completion of a comprehensive standardized certification exam (The identical exam is taken by professionals in Florida and several other states that have adopted the Florida model.
The academic qualifications for CBA include:
A master’s or doctoral degree in any field (the professionals in our group have degrees in psychology, speech-language pathology and special education)
Completion of 190 clock hours of graduate level instruction, including the following specific content areas: basic behavior analytic principles (45 clock hours), application of behavior analysis principles and methods in applied settings (45 clock hours), single subject research methods (20 clock hours), any other behavior analysis content area (70 clock hours), and ethical and professional standards issues relevant to the practice of behavior analysis (10 clock hours).
The clinical requirements include at least one year of full-time supervised clinical experience in the delivery of behavior analytic services.
A detailed account of the specific content covered on the certification exam for the CBA and for the ABA is provided in a document called "Task List and Knowledge, Skills, and Abilities Statements for Applied Behavior Analysis." This document is available by writing to the Department of Children and Families, Developmental Services Program, 1317 Winewood Blvd., Tallahassee, Florida 32399-0700.
Several states, in addition to Florida and Pennsylvania, have adopted this certification protocol. To my understanding, they include Texas, California, Oklahoma and New York. A committee of behavior analysts from across the country is currently working to establish a national certification protocol. During a recent conversation with Jerry Shook, I learned that the national certification will also be based on the Florida model. The national tests will be given at the annual conventions of the Association for Behavior Analysis beginning in the year 2000. Individuals who have passed state-level CBA and ABA exams will grandfather into the national certification.
Reflections:
My personal experiences in the PA certification process were unequivocally positive. While information about ABA had been part of my professional training as a Speech-Language Pathologist some 25 years ago and a part of my tool bag throughout my career, I appreciated the opportunity to explore the field in greater depth and to learn about its evolution over the years. I learned that ABA has clearly matured since 1974 when it was still known as "behavior modification." It is truly a framework for science-based approaches to intervention, not just a collection of procedures as the term "behavior modification" may imply. ABA is a self-correcting framework for science-based intervention programming.
While participating in the course sequence, I also became more acutely aware of the ways in which ABA methodology differs from the clinical methods used in speech-language pathology and of the ways in which they are alike. In some respects, I agree with Prizant and Wetherby (1998) who suggest that manifestations of ABA and manifestations of Speech-Language Therapy (Communicative Enhancement) exist on a continuum rather than in a dichotomy.
In fact, the contemporary behavioral approaches (e.g., Bondy, 1996; Dyer & Kohland, 1991; Koegel & Koegel, 1996; Carr and Durand, 1985; Dunlap, Vaughn, and O’Neill, 1998; Leaf & McEachin; Sundberg and Partington, 1998) share important features with contemporary approaches to communicative enhancement (e.g., Prizant, Schuler, & Wetherby, 1998). Consider, for example, the emphasis placed on "establishing operations" and "mand training" described by Sundberg and Partington (1998) and compare it to the emphasis placed on "communicative temptations" and "joint activity routine" described by Prizant and Wetherby (1988). The similarities are striking. My impression, frankly, is that both approaches could be enriched by a more active information exchange between the two. I feel fortunate for having had the opportunity to appreciate both perspectives.
The use of distance learning technology allowed our courses to be taught by numerous well known behavior analysts from across the country. In addition to Dr. Shook, the following individuals were included among this faculty: Tim Heron, Richard Foxx, Saul Axelrod, Andy Bondy, Lori Frost, Mark Sundberg, Jose Martinez-Diaz, Haydee Toro, Vincent Carbone, and others. Live appearances of the instructors occurred at each downlink site by rotation, and provided students with opportunities to network with virtuosos in the field. I don’t believe that any of us lost our feeling of association with the professional group from which we arrived at these classes (e.g., SLP, OT, Special Education, Psychology). But rather we came to develop a parallel and increasingly integrated professional affiliation with the field of ABA. The integration of these fields of expertise will surely be greater than the simple sum of the parts.
One of our courses was taught on the Penn State Campus in State College. All 75 ABA students from across the state had the opportunity to see each other and our faculty in 3D space during an intensive around-the-clock marathon of classes. In addition to the substance shared by the faculty, this event provided some excellent networking opportunities and it set the stage for vigorous discussions about clinical and educational methodology. Note that by this time, we had all completed several ABA courses. During the breaks we discussed ways to expand/improve the delivery of services to children with autism. My fellow classmates were using behavioral terminology and thinking behavioral thoughts as if it were second nature. We became colleagues and agreed to support the beginning of an affiliate ABA chapter in PA. Increasingly, this group expressed their appreciation of the parents who advocated for the certification process and of the individuals (CISC staff and Dr. Shook) who made it possible.
For those who wish to work directly with children with autism, I believe that certification in ABA is an important item in the tool bag. Children with autism spectrum disorders clearly have a learning style that differs from neurotypical children. When surrounded by the natural environment, they present with serious delays that impede further learning. When the environment is engineered systematically, they can make enormous progress. The ABA framework offers important engineering tools, and the ABA literature offers important data to validate particular procedures for children with autism (e.g., Dregman & Gerdtz 1997; Matson, Benavidez, & Compton 1996; Newsome, 1998). This information, combined with information from other professional areas, will help professionals to support families in providing appropriate educational opportunities for their children with autism. Certification in ABA is a systematic and productive way to assimilate that information. I’d do it again in a minute!
(Editor's Note: A lengthier version of this article, which includes extensive references, is available from CT FEAT.)
Help! 1441 New Messages in My Inbox...
Are you sometimes overwhelmed by the volume of e-mail generated by your favorite autism list? Are you tempted to sign-off completely? Here’s a possible solution to e-mail overload.
You can keep in touch with the world of autism by subscribing to the FEAT Daily Online Newsletter. The newsletter’s sponsor, Families for Early Autism Treatment (FEAT), is a non-profit parent organization based in California.
FEAT Online’s editor, Lenny Schafer, subscribes to a half-dozen of the larger autism related e-mail lists. He also combs the daily newspapers, Internet Newsgroups, and web sites for interesting news. National parent-inspired organizations promoting autism research, like NAAR, CAN, AGRE and the MIND Institute, regularly send him information regarding important new developments. FEAT Online also keeps in touch with all of the major advocacy organizations.
Newsletter topics range from "Behavioral Programs" to "Secretin Updates." Schafer boils it all down to just two mailings per day and e-mails them to you at no cost. This list is "announcement only" and does not have interactive discussions. For more information, or to subscribe, contact their website at: www.feat.org/FEATNews.
SCHOOLS THAT WORK
(By Richard Irwin)
Travels With Ana
My wife Ana and I, like so many people with young children, don’t seem to get out a lot. When we do, our time is usually spent at various autism-related events in search of information that might be of use in our five-year-old son's applied behavior analysis (ABA) program. Like most parents of children with autism spectrum disorders, we read specialized books, surf the net, and attend workshops, lectures and parent meetings - all in search of information that may help our children.
These information sources are helpful but limited, especially when it comes to learning new treatment techniques. Many times I’ve come away from an ABA talk thinking that the ideas presented were wonderful, but with little, or no, idea of how to actually implement them. That old adage "a picture is worth a thousand words" is very real for those of us with no formal training in ABA.
An excellent way to see state-of-the-art ABA techniques demonstrated firsthand is to visit a center based ABA school. In addition to the Connecticut Center for Child Development (CCCD) right here in Fairfield (to be relocated in Milford this Spring), there are a number of out-of-state schools within reasonable driving distance. Some, like New Jersey's Princeton Child Development Institute (PCDI), are among the most highly regarded programs in the world. Various of these schools have on-going research programs that contribute substantially to the body of knowledge in the ABA field.
The Alpine Learning Group
The majority of the schools have visitor days. The typical schedule includes a description of the program and its philosophy, observation time, and a question and answer period. It was with this in mind that Ana and I decided to visit The Alpine Learning Group (ALG) Inc. in Paramus, New Jersey. ALG is a private, non-profit school founded in 1988 by a group of parents and professionals to teach children with autism using the principles of ABA. The school currently services 27 children ranging from ages 3 to 21. The staff numbers 27 full-time professionals, including three Ph.D. level clinical psychologists (including Dr. Bridget Taylor of Let Me Hear Let Me Hear Your Voice Your Voice fame) who serve as the school’s directors.
The school is divided into approximately 6 "classrooms" with each classroom containing "teacher" level staff members and the necessary number of one-to-one instructors. The majority of the staff has bachelor’s degrees in psychology, with the teacher level positions being staffed by the more highly trained and experienced staff members. A minimum of two teachers per classroom is required to promote and facilitate immediate and effective problem solving.
Parents of children enrolled in ALG are required to observe their child in school a minimum of three hours per month. There is also a home program component, tailored to the needs of the individual child. Finally, each child’s program is reviewed monthly by the Director of Educational Programming, along with the parents and pertinent staff.
In 1998, ALG moved into an impressive new facility. Entering into this spacious and cheery building, I was struck by the sheer energy around us. Each child transitions from one instructor to another, one classroom to another, or one activity to another, every twenty minutes or so. The result is a high level of activity throughout the building with children and instructors in seemingly constant motion.
Along with approximately 30 other visitors (mostly parents), we were brought into the school’s main conference area and given a presentation on the school’s structure and services by Dr. Linda Meyer, the school’s Executive Director and one of it’s founders. After the presentation, we were broken up into two groups and taken through all the classrooms in the school. We were asked to refrain from questioning staff members who were engaged in teaching. We also were instructed not to talk to the students unless they initiated conversation with us.
As we went into each classroom we were allowed to wander freely about the room and observe. The most striking impression was how well behaved the children were. Despite that gaggle of intrusive adults swarming around them, each child stayed completely on-task (with the minor exception of one little boy who I think was flirting with my wife). In addition, I did not observe a single inappropriate or aggressive behavior. In short, the children were downright angelic!
ALG utilizes the latest and greatest techniques to teach their children. In addition to one-on-one discrete trial teaching, ALG also uses several newer innovations to promote independence, choice and the initiation of conversation. Each child had their day and transitions arranged through the use of a picture activity schedule (book) and every child was on a token system of some sort. Embedded in the picture schedules of many of the children were Language Master cards used to prompt the child to initiate conversations or make comments.
The Language Master works like a tape recorder in that it allows one to record short sentences on cards that contain a recording strip. The child is taught to run the card through the Language Master and repeat the modeled sentence. Eventually the Language Master is systematically faded and the child is commenting without prompting.
ALG is very pragmatic in their approach to programming. Many children we observed were working on mainstream academic programs such as reading, writing and arithmetic. For these programs they use commercially available programs such as the Edmark Co. Level I reading program. Other children were working on everyday life skills such as learning to request politely a desired item or to read a calendar. These programs are designed to meet needs the parents might have with respect to their child’s functioning at home or in society and are unique to the child. In one classroom, there was even a complete washer and dryer set used to teach children how to do laundry!
After the tour and observation period, we were all brought back to the main conference room for a question and answer period. Dr. Meyer patiently answered questions until we, as a group, were completely questioned out. However, I did glean a few extra nuggets of information that are worth relating. First, ALG has an outreach program that was started in 1995 to extend services beyond the school. Second, for those parents who are thinking of starting a center-based ABA program, the directors at ALG offer six free hours of consultation on this process and share their experience.
So, if you find yourself with the time and are willing to travel a bit (2.5 hours form Southeastern Connecticut), I highly recommend a visit to the Alpine Learning Group. For information about their visitor schedule call 201-612-7800. It is a wonderful learning experience that will motivate and excite you about the possibilities for your own child’s program. It certainly did me!
CONNECTICUT PARENT RESOURCES
Parenting a child with an autism spectrum disorder can be very demanding. Given the enormous amount of work involved, it is quite extraordinary when parents find the means to help not only their own children, but other children as well. Three Connecticut parents, Maggie Casciato, Stacy Hultgren, and Lois Rosenwald, have greatly extended themselves on behalf of all children with autism. Their commitment to promoting parent networking has resulted in the creation of important resources for our parent community.
Maggie Casciato and Lois Rosenwald lead support groups located in Fairfield and New Haven counties, respectively. In addition to holding regular parent support meetings, these organizations present speakers on a variety of topics (ranging from etiological issues to treatment options). These presentations often draw large audiences of parents and professionals.
Maggie Casciato’s group is called the "Atypical PDD/Asperger Support Group." In order to get on the group’s mailing list, you can write to her at 49 Ascolese Road, Trumbull, CT 06611. You also can obtain information about the group’s activities, including information regarding upcoming meetings and speakers, at their web site: http://pages.prodigy.com/CT/maggie/pdd.html
Lois Rosenwald’s group is called the "Greater New Haven PDD/Asperger’s Support Network." In order to get on the organization’s mailing list, or to obtain further information about upcoming presentations, you can write to Lois at 27 Broadview Road, Cheshire, CT 06410, or call her at 203-272-7529.
Stacy Hultgren is the editor of the very well written "PDD NETWORK" newsletter, which has more than 350 subscribers. The newsletter features in-depth articles about all sorts of interesting topics in the world of autism spectrum disorders, both local and nationwide. These range from interviews with professionals to extensive coverage of information presented at conferences and workshops. The newsletter also highlights notable events and resources. If you are interested in subscribing, please contact Stacy Hultgren at BHULT40@aol.com, or write to her at: 21 Sharon Court, Shelton, CT 06484. The cost is $12 a year for 6 issues, or $24 for overseas. Make your check or money order payable to "Atypical PDD/Asperger Support Group."
CT FEAT’S FEBRUARY PARENT RESOURCE MEETING
At the February CT FEAT Parent Resource meeting, there was a screening of a video which describes the "Social Stories" method for teaching social understanding. This popular method was developed by Carol Gray, who will be appearing at the upcoming Yale conference described elsewhere in this newsletter. Following the video, parents discussed how they have used "social stories" in their behavioral intervention programs.
CT FEAT’s Parent Resource meetings take place quarterly at the Rocky Hill Congregational Church and are for parents and family members only. There is a special "Newcomers" presentation that takes place at 1:30 p.m., before the general meeting which begins at 2:00 p.m. For more information, or directions, you can call 860-571-3888 or visit the CT FEAT web site at
www.ctfeat.org.
FUNDRAISING SUCCESS
The success of CT FEAT’s first annual fundraising appeal has surpassed even our most optimistic expectations. At last count, we had raised almost $3,500.00, and checks are still arriving weekly. Many of the checks have been accompanied by personal notes from parents who had been helped by our organization. For example, one parent wrote "In lieu of gifts for our daughter’s fourth birthday, we asked those attending to make a contribution to CT FEAT." Enclosed with this note were seven checks totaling $201.00! This is just the sort of positive "reinforcement" that keeps our organization’s volunteers working so hard on behalf of children and their families. Thanks again to all of our contributors!